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About Usback to top
To Join the Autism Society You can join our local chapter, the Autism Society of WNY, by joining the National Autism Society. A $40 donation gets you membership to the National Autism Society and the local chapter. Along with the memberships, you also get a subscription to the Autism Society's Autism Advocate, access to a community that provides support and information to families affected by autism, and advocacy for autism related issues. It also gives you a 10% discount at the National's online store.

Disclaimer and How to use this page This page is intended for Information only. We do not endorse or get paid by any of these links. We do not have personal experience with all of these.
** How to use this page: Click on the the blue title and it will link you to more information on that topic. The links are divided up in to categories, to jump to a specific category, click on the arrows to the right of 'select category to jump to' box, then scroll down to the category you wish to go to.

Our Philosophy The Autism Society of WNY Chapter's philosophy is to support the parents and caregivers of individuals with Autism Spectrum Disorder (ASD). We do so by information and referral services, holding Parent Support Meetings and bi-annual workshops. The Autism Society's efforts are focused on meaningful participation and self-determination in all aspects of life for individuals on the autism spectrum and their families. We promote individual, parental and guardian choice to assure that people on the autism spectrum are treated with dignity and respect. For a more detailed explanation of both the National and Local Autism Society's philosophy click on Our Philosophy link.

Options Policy The Autism Society promotes the active and informed involvement of family members and the individual with autism in the planning of individualized, appropriate services and supports. Each family and individual with autism should have the right to learn about and then select, the options that they feel are most appropriate for the individual with autism. Click on Options Policy for a complete explanation of the Options Policy.

To Donate If you would like to donate to the local WNY Chapter, please send a check payable to Autism Society WNY. Checks can be mailed to ASWNY, 19 Limestone Drive, Suite 1, Williamsville, NY 14221. If you would like to donate to the National Autism Society, donations can be made online by clicking on the To Donate link.

Autism Society WNY New Facebook Page Check us out on our new Facebook page. Follow the link and Like us on Facebook.

Sign up for our Email List Join our email list for information on our events, Support Coffees and other agency's events in the area. Click this link or the box on the left to Join our Email List. Once you click the link, it will ask for minimal information and it will send a confirmation email, click the link in the email to confirm.


Gut-Brain Connection Linkback to top
Interview with Dr Derrick MacFabe Link to an interview posted on the web site of Canadian documentary "The Autism Enigma". On October 27, 2012 the Autism Society WNY Chapter hosted a workshop "Putting the Pieces Together - Some New Developments in Autism Research" with Dr. Derrick MacFabe. The workshop was a overwhelming success and was attended by over 300 people.

Dr Derrick MacFabe Research Paper Dr. MacFabe is a researcher, neuroscientist and physician. His research includes exploring diet, antibiotic and bacteria related gut problems in ASD that can impact brain development leading to behavioral and social interaction issues and changes in the brain. Dr. MacFabe looks at Autism as a "whole body disorder" that affects brain function and behavior. This is a review article for his paper.

The Kilee Patchell-Evans Autism Research Group Dr. Derrick MacFabe, Director of the Kilee Patchell-Evans Autism Research Group, views autism as a whole body disorder that affects brain function and behavior particularly via immunological, digestive, infective, epigenetic and metabolic factors.

Exploring the Gut-Brain Connection in Autism On August 7, 2012, Autism Canada and the Autism Research Institute co-hosted the Scientific Symposium 2012, Exploring the Gut-Brain Connection in Autism, to explore the potential role of infectious agents in autism phenotypes. Watch video presentations by four researchers Dr. MacFabe, Dr Frye, Dr. Emma Allen-Vercoe, and Dr. Finegold.

Great Articles and Research by Dr Richard Frye and Dr. Dan Rossignol Here is a link to many articles and research papers by Dr. Rossignol, Dr. Frye and some of their colleagues. There are some really good articles here.


Current Topics of Interestback to top
Autism One National Conference Five day Conference with over 100 speakers. It is a great conference with a wide variety of topics. Click on the blue link to learn more. It is held just before Memorial Day in Chicago.

New York State Immunization Requirements for School Entrance/Attendance Here is the link to the current table of Immunization Required and recommended by NYS for admitting and attending school.

New Criteria for Diagnosis of Autism with the Release of the DSM-5 One of the most important changes in the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) is to autism spectrum disorder (ASD). The revised diagnosis hopefully represents a new, more accurate, and medically and scientifically useful way of diagnosing individuals with autism-related disorders. It remains to be seen how diagnosticians and clinicians will use the new criteria and the impact it will have on services and insurance coverage for those currently diagnosed Asperger's and PDD-NOS.

What it is like to have Autism Here is a link to a video made by 13 year old Rosie, who lives in the U.K. and has Asperger's Syndrome. It is a very good video to explain Autism.

Autism One National Conference Videos The 2014 Autism One Conference was just held in Chicago. This year many of the workshops are available online.


National Autism Society (Our Parent Organization)back to top
To Join the Autism Society You can join our local chapter, the Autism Society of WNY, by joining the National Autism Society. A $40 donation gets you membership to the National Autism Society and the local chapter. Along with the memberships, you also get a subscription to the Autism Society's Autism Advocate, access to a community that provides support and information to families affected by autism, and advocacy for autism related issues. It also gives you a 10% discount at the National's online store.

Article on Sensory Friendly Films Click to read an interesting article from Time Magazine on the Sensory Friendly Films from AMC Theatres and the National Autism Society. The local theater is AMC Maple Ridge 8 located at the corner of Maple and Sweethome in Amherst.

Sensory Friendly Films Autism Society link AMC Entertainment (AMC) and the Autism Society have teamed up to bring families affected by autism and other disabilities a special opportunity to enjoy their favorite films in a safe and accepting environment on a monthly basis with the "Sensory Friendly Films" program. The movie auditoriums will have their lights brought up and the sound turned down, families will be able to bring in their own gluten-free, casein-free snacks, and no previews or advertisements will be shown before the movie. Additionally, audience members are welcome to get up and dance, walk, shout or sing - in other words, AMC’s “Silence is Golden®” policy will not be enforced unless the safety of the audience is questioned.The local theater is AMC Maple Ridge 8 located at the corner of Maple and Sweethome in Amherst.

National Autism Society (Our Parent Organization) The Autism Society is the leading voice and resource of the entire autism community in education, advocacy, services, research and support. The Autism Society is committed to meaningful participation and self-determination in all aspects of life for individuals on the autism spectrum and their families. The Autism Society accomplishes its ongoing mission through close collaboration with a successful network of chapters, members and supporters. Contact Phone (301) 657-0881 or 1-800-3AUTISM (1-800-328-8476) or click on the link for their website.

Autism Source Autism Society's On-line Resource Database. Search nationwide autism-related services and supports by location or service type. The Autism SourceTM Resource Database, created in 2004, is the most comprehensive database of its kind. The Autism Society strives to offer only credible and reliable resources to our constituents, therefore we have employed our nationwide network of chapters and collaborated with other autism organizations and professionals throughout the U.S.

Autism Advocate The National Autism Society has some of the Autism Advocate Magazines free online to read. Anyone can register for free, get a user name and password, then login to access the magazines. Members of the Autism Society will have access to additional magazines.

The Autism Society of America Warning of Misleading Solicitations It has been brought to the Autism Society of America's attention that individuals have been solicited for donations from an organization identifying itself as the Autism Spectrum Disorder Foundation implying or perhaps suggesting that the organization works with the Autism Society. The Autism Society has no affiliation or association with the Autism Spectrum Disorder Foundation and does not solicit contributions by calling individuals or going door to door in neighborhoods.


Holiday Resources back to top
Holiday Helpful Hints The Autism Society has published a list of Holiday Hints to help Individuals on the Autism Spectrum through the Holidays.

7 Gifts to Take to a Family with Autism Here is a very good article on Huffpost Healthy Living. It has 7 very good ideas for gifts to give to a family with a child with Autism.

Toy Guide for Differently abled kids Toys R Us has come out with a toy guide for Differently Abled kids. It will give you some ideas for kids with special needs. It has created several different categories of areas of need and each toy is noted with the categories that is helps with. It is always best to know the child you are buying for. This link takes you to the ad section, you will need to scroll over to the Differently Abled catalog. Also available in Spanish

Halloween Tips from the Autism Society Some tips for helping kids on the Autism Spectrum with Halloween.


Summer Resourcesback to top
Cradle Beach Camp Cradle Beach, located in Angola, NY, serves the needs of children between the ages of 8 and 16 with disabilities and those who come from disadvantaged backgrounds in their summer camping program. Children come to camp for 7-10 days of residential programming in an inclusive setting where they are provided a healthy environment and organized activities to promote socialization, self-worth, and decision making, in an atmosphere of love and acceptance. Cost is a sliding fee scale based on family income. For more information, or to request an application, please call the Cradle Beach Office at (716) 549-6307 Ext. 205 or e-mail admissions@cradlebeach.org.
Cradle Beach also offers weekend respite in the spring and fall through the Medicaid Home and Community Based Waiver.

Buffalo Hearing and Speech Center Buffalo Hearing & Speech Center's Social Communication Program is available to students age 5 through high school who have social communication deficits. This program helps students to develop successful social communication skills in the areas of Conversational Skills, Self-Regulation Skills, Cooperation Skills, and Generalization Skills. They also run programs in the fall and spring. Costs are covered by some insurance plans.

Free Summertime Children Theater, Eastern Hills Mall The 2013 Children’s Summer Theater series offers FREE professional children’s entertainment every Saturday from July 13-August 17 starting promptly at 11am in front of Bon-Ton. The shows are free and open to families and children of all ages. Children 12 and under will receive a $2 lunch coupon to use at participating food court vendors. Click link for more information. The 2014 schedule has not been release yet. Check back later.

Fisher Price Free Movies Series Come to The Aurora Theatre in East Aurora and enjoy a classic family film as our guest on Wednesdays at 11a.m. Meet and greet the Fisher-Price® Little People® Characters, see Fisher-Price® animated shorts before the film and receive special Fisher-Price® Toy Store Coupons! Click the link for 2014 Schedule.

Au-some Evenings at Explore and More On the second Friday of every month, these special evenings will give children with Autism Spectrum Disorders, their friends and family an opportunity to play and learn together in an understanding and supportive environment. Children must be accompanied by a parent or guardian and will have access to the museum and Imagination Playground. These evenings will be free of charge to participants. Space is limited so reservations are essential. Please call Peg at (716) 332-4170 to secure your spot.

Institute for Autism Research (IAR) The Institute for Autism Research at Canisius College offers two social development programs for children ages 7-12 years with high functioning autism spectrum disorders. The summer-max program seeks to maximize social competencies by providing instruction and therapeutic activities and runs Monday thru Friday from 8:50 a.m.-4:10 p.m. for five weeks at Canisius College. The Max-out program is based on the summer program and runs during the school year. The 90 minute sessions are held two times per week for 18-24 weeks from 4:30 p.m.-6:00 p.m.

I Can Bike (formerly Loose the Training Wheels Approximately 80% of the individuals with disabilities who participate in our iCan Bike program ride a two-wheel bicycle independently by the end of our five-day program. The remaining 20% of participating individuals with disabilities make tremendous progress towards this goal and leave our program accompanied by parents and/or siblings trained as ‘spotters’ to pick up where we leave off!

Sensory Friendly Films AMC link AMC Entertainment (AMC) and the Autism Society have teamed up to bring families affected by autism and other disabilities a special opportunity to enjoy their favorite films in a safe and accepting environment on a monthly basis with the "Sensory Friendly Films" program. The movie auditoriums will have their lights brought up and the sound turned down, families will be able to bring in their own gluten-free, casein-free snacks, and no previews or advertisements will be shown before the movie. Additionally, audience members are welcome to get up and dance, walk, shout or sing - in other words, AMC’s “Silence is Golden®” policy will not be enforced unless the safety of the audience is questioned.The local theater is AMC Maple Ridge 8 located at the corner of Maple and Sweethome in Amherst. Cost is the same as a Matinee movie, check with the theater for current cost.

A-List:Summer Activity List for Children with ASD This list of Summer Activities including summer camps, therapy programs, recreation, trains, state park access and more was developed by CASE, Children's Guild Foundation ASD Clinic at Women's and Children's Hospital of Buffalo. It is a very comprehensive list of things to do in the Buffalo area for the Summer of 2014.


Starter Resourcesback to top
Advice for Parents of Young Autistic Children: Spring (2008) This paper is geared toward parents of newly diagnosed autistic children and parents of young autistic children who are not acquainted with many of the basic issues of Autism. The authors' discussion is based on a large body of scientific research.

"What is Autism?" Brochure This easy-to-read, colorful brochure provides an overview of Autism and the National Autism Society.

Life Journey Through Autism: A Parent's Guide to Research This guide is the first in a series of planned publications that will examine and illuminate various aspects of living with Autism. This guide is a basic tool that will help you ask questions and investigate issues related to treatment for your child. You will need Adobe Acrobat Reader to download this resource.

Children’s Guild Autism Spectrum Disorder Center Located at Women's and Children's Hopital, the center takes a team-based approach to evaluation. During one visit, each child is seen by a developmental pediatrician, child neurologist, and child psychologist. After the visit, the team discusses the child and determines the diagnosis and/or need for any additional testing or services. The Center has a full time social worker and nurse and offers a monthly parent group, newly diagnosed sessions and information resources for parents of children diagnosed with an autism spectrum disorder. Contact: (716) 878-7600

New York State Early Intervention Program The Early Intervention Program is a statewide program that provides many different types of early intervention services to infants and toddlers with disabilities and their families.

First 100 Days - Autism Speaks The Autism Speaks 100 Day Kit is created specifically for newly diagnosed families, to make the best possible use of the 100 days following the diagnosis of autism. They also have a 100 day toolkit for Asperger's and High Functioning Autism.

Early Childhood Direction Center The ECDC provides free information, referral, technical assistance and support to families, professionals, and community agencies concerned with children birth to five with suspected or diagnosed delays or disabilities. Provides ongoing community training programs for both parents and professionals. Consider joining the ECDC information distribution list. This is an all inclusive list, this is not just autism information. Please send an email to ecdc@kaleidahealth.org and enter parent or professional in the subject line.

Autism 101 Online Course This free online course will take approximately 30 minutes to complete. The course covers the following areas: Introduction to the Autism Spectrum; Overview of Treatment Options; Treatment Assistance; Transition to Adulthood; and More Information and Resources.

Kirch Developmental Services Center, University of Rochester Medical Center Kirch Developmental Services Center is the primary clinical program of the Division of Neurodevelopmental and Behavioral Pediatrics. We provide services to children with developmental delays and disabilities such as autism, cerebral palsy, spina bifida, and intellectual disability. We provide evaluation of children who are suspected of having a disability. When children are known to have a disability, we provide specialized health care, monitoring their progress and paying extra attention to health and behavior challenges that go along with each disability. We provide specialized treatments for certain health and behavior challenges, like spasticity and feeding problems. We provide information and resources to families to help them get the right services or support in their community. Contact: (585) 275-2986

Guide to Understanding Supports and Services Administered by the New York State Office for People with Developmental Disabilities (OPWDD). The Guide was developed to inform families about the wide range of supports and services available to qualified individuals and to assist them in accessing those services for their loved one with a developmental disability.


Sibling Resourcesback to top
Canisius Sibshop A program for Siblings of children with Autism. Sibshop is designed to meet the needs of the brothers and sisters of children diagnosed with a serious developmental disorder. Sibshop meets once a month during the school year and provides support and guidance to siblings of children with developmental needs. It is more like a club than a class. Sibshops are lively, action packed 3 hour workshops that celebrate the many contributions made by brother and sisters of kids with special needs. For ages 6 - 12. They also are working on a TeenShop. Please call for more information 716-888-2895.


Parent Resourcesback to top
Parent to Parent of New York State Parent to Parent of NYS supports and connects families of individuals with special needs. They provide the support and connection through their parent matching program; information and referral; and trainings.

Parent Network of Western New York A community resource for families of individuals with special needs and for professionals who work with these families. Parent Network’s goal is to empower families to successfully advocate for their children with special needs and to see that they receive proper care and education by offering seminars, workshops, conferences, information and referral services, and resources.

Project Lifesaver of WNY The only law enforcement based tracking program in the world created for those prone to wandering is now available in Western New York. This program has a 100% success rate (with an average search time of less than 30 minutes) and is responsible for over 2,000 rescues of children with developmental disabilities (autism, Down Syndrome, mental retardation, etc.) and elderly people with Alzheimer’s and related disorders.

Chantal Sicile-Kira Chantal Sicile-Kira To learn more about Chantal SIcile-Kira, the award winning author, professional and parent of a son with Autism, click the blue link. She is the author of two of the books that we give out, "Autism Spectrum Disorders, the Complete Guide to Understanding Autism, Aspergers' Syndrome, Pervasive Developmental Disorder, and Other ASD's" and the latest one "41 Things to Know About Autism".

Natural Learning Concepts Articles NLC has a great collection of free articles under The Greatness of Autism - Articles that will make you Laugh and Cry. They cover topics like moving up to the next grade, summer stress, holiday stress, that's not what I meant, tips for an autism classroom and many others. They have articles for both parents and professionals. You can read them online or download and print them. You can sign up for their email list and get emails with links to the articles. For some of them, because of spam controls, you need to enter your name and email address.

Western New York 2-1-1 Get Connected Get Answers Locate Health and Human Services in WNY. Search for programs and agencies in WNY by county and/or by specialty.

Assurance Wireless If you qualify and are approved for the program, you'll get a FREE Assurance Wireless phone, 200 FREE minutes of wireless service each month for local and long distance calling within the U.S., and more. You may qualify if you receive state or federal assistance. See website for details.

MedicAlert Foundation With a MedicAlert medical ID, emergency responders, police and good Samaritans can quickly identify missing people and connect them with MedicAlert's 24/7 call center to reunite them with loved ones and make sure they receive the emergency care they need.

Keep Me Safe IDs Keeping children with Autism safe is exactly what our customized QR Code Bracelets are all about. This unique lost child safety device protects personal information from the naked eye but can be easily scanned via smartphone to provide first responders and family with vital information when a child bolts and wanders.

Wrightslaw Parents, educators, advocates, and attorneys go to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.

Interdisciplinary Council on Developmental and Learning Disorders Founded by Stanley Greenspan and Serena Wieder, the Interdisciplinary Council on Developmental and Learning Disorders has been a pioneer in its work to advance the identification, prevention, and treatment of developmental and learning disorders. ICDL extends knowledge of developmental processes and provides a framework (DIR/Floortime Model) for understanding and improving interventions with infants, children and adults with challenges in relating, communicating and thinking, including autism spectrum disorders.

Adult Career and Continuing Education Services-Vocational Rehabilitation (ACCES-VR) Adult Career and Continuing Education Services-Vocational Rehabilitation (ACCES-VR) offers access to a full range of employment and independent living services that may be needed by persons with disabilities through their lives.

Talk About Curing Autism (TACA) Talk About Curing Autism (TACA) provides information, resources, and support to families affected by autism. This website has extensive resources for starting the Gluten-Free Casein-Free Diet.

Autism Up! Autism Up! provides support and education to individuals with Autism Spectrum Disorder, their families, and professional service providers by offering information, resources, workshops and conferences. They are located in Rochester, NY.

Erie County Agencies & Services for Individuals with Disabilities Erie County Office for the Disabled has compiled a list of agencies and services for individuals with disabilities in Erie County New York.

Big Red Safety Toolkit The Big Red Safety Toolkit is for a caregiver for someone with an Autism Spectrum Disorder (ASD) who is prone to wandering off from a safe environment, and whose diagnosis may interfere with their ability to recognize danger and/or stay safe.

First Responder Toolkit Some people with Autism Spectrum Disorders (ASDs) are prone to wandering away from a safe environment and may have little ability to recognize danger and/or stay safe. The National Autism Association is committed to providing direct aid and support to those at risk and have created a toolkit which contains tools and resources for First Responders.

Interactive Autism Network (IAN) The Interactive Autism Network (IAN) is an innovative online project bringing together tens of thousands of people affected by autism spectrum disorders (ASD) and hundreds of researchers in a search for answers. Individuals with an ASD and their families can share information in a secure setting to become part of the largest online autism research effort. The data collected by IAN both facilitates scientific research and empowers autism community leaders to advocate for improved services and resources. In addition, anyone impacted by an ASD can become part of IAN's online community to stay informed about autism research and make their voices heard.

DDAWNY 2011 Guide to Services This guide is intended to assist individuals, family members, community organizations and school district personnel who are seeking services and community supports to meet the needs of people with developmental disabilities.

Institute for Autism Research (IAR) The Institute for Autism Research at Canisius College offers two social development programs for children ages 7-12 years with high functioning autism spectrum disorders. The summer-max program seeks to maximize social competencies by providing instruction and therapeutic activities and runs Monday thru Friday from 8:50 a.m.-4:10 p.m. for five weeks at Canisius College. The Max-out program is based on the summer program and runs during the school year. The 90 minute sessions are held two times per week for 18-24 weeks from 4:30 p.m.-6:00 p.m.

DDAWNY 2012 Respite Handbook The handbook contains a list of agencies and what type of respite they provide. Types of respite include in-home, out of home, before and after school, and school break programs. It also lists which counties or areas each agency covers.

Health Insurance Coverage for Adults with Developmental Disabilities "Any unmarried dependent child, regardless of age, who is incapable of self-sustaining employment by reason of mental illness, developmental disability, or mental retardation as defined in the mental hygiene law, or physical handicap and who became so incapable prior to the age at which dependent coverage would otherwise terminate, shall be included in coverage subject to any pre-existing conditions limitation applicable to other dependents." N.Y. ISC. LAW § 3216 : NY Code - Section 3216: Individual accident and health insurance policy provisions
If this applies to you, ask your current health insurance carrier for a form that you can fill out to document such disability and an inability to achieve "self-sustaining employment".

Autism Spectrum Disorders Resources Women & Children's Hospital of Buffalo has a collection of autism spectrum disorders resources. Some of the topics included in the list are haircuts, toilet training, medicaid waiver services and travel resources. Many of the local resources have been recommended to us by parents or other members of the community and listing the resources does not imply endorsement of any particular individual or service.

New Autism Speaks Sleep Strategies Guide This informational booklet is designed to provide parents with strategies to improve sleep in their child affected by autism spectrum disorders (ASD).

Developmental Delay Resources (DDR) DDR is dedicated to meeting the needs of children with developmental delays in sensory, motor, language, social, and emotional areas. DDR is the ONE resource network integrating conventional and holistic approaches for parents and professionals who support children with special needs.


Parent/Professional Training back to top
Parent Network of Western New York A community resource for families of individuals with special needs and for professionals who work with these families. Parent Network’s goal is to empower families to successfully advocate for their children with special needs and to see that they receive proper care and education by offering seminars, workshops, conferences, information and referral services, and resources.

CARD Albany The Center for Autism and Related Disabilities at the University at Albany (CARD Albany) is a university - affiliated resource center that brings research and practice together in community settings. CARD Albany provides evidence-based training and support to families and professionals, and through ongoing research, contributes knowledge to the field of autism spectrum disorders.

CASE: Center for Autism Support and Education CASE provides information, training and support for families of individuals who have Autism Spectrum Disorder (ASD) and the professionals who work with them. CASE is a collaboration of Autistic Services, Inc., Daemen College, Early Childhood Direction Center, Parent Network of WNY and Summit Educational Resources.

Texas Statewide Leadership for Autism Training Through the network of 20 regional Education Service Centers (ESCs) around the state and in conjunction with the Texas Education Agency (TEA), the Texas Statewide Leadership for Autism Training (www.txautism.net) provides a mechanism to access training, technical assistance, support, and resources for educators who serve students with autism.

Autism Internet Modules (AIM) Developed by the Ohio Center for Autism and Low Incidence (OCALI) in partnership with the Autism Society of America (ASA), the Nebraska Autism Spectrum Disorders Network, the National Professional Development Center on Autism Spectrum Disorders and Toronto's Geneva Centre for Autism, this series of online learning modules includes information on assessment and identification of ASDs, recognizing and understanding behaviors and characteristics, transition to adulthood, employment, and numerous evidence-based practices and interventions.


Asperger's/HF Autism Resourcesback to top
Hyperlexia Resources The Center for Speech and Language Disorders.This group of children within the Autism Spectrum read far above what would be expected for their age and are fascinated with letters, numbers and logos. Information is available on learning style/remediation techniques.

OASIS @ MAAP The Online Asperger Syndrome Information and Support (OASIS) center has joined with MAAP Services for Autism and Asperger Syndrome to create a single resource for families, individuals, and medical professionals who deal with the challenges of Asperger Syndrome, Autism, and Pervasive Developmental Disorder/ Not Otherwise Specified (PDD/NOS).

Asperger's and HF Autism 100 day toolkit The Autism Speaks 100 Day Kit and the Asperger Syndrome and High Functioning Autism Tool Kit were created specifically for newly diagnosed families to make the best possible use of the 100 days following their child's diagnosis of autism or AS/HFA.


Local Agencies/Educational Optionsback to top
Summit Educational Resources Summit Educational Resources is a private, not-for-profit agency providing a broad range of services to children and adolescents with Autism, language disorders, hearing impairment and related developmental disabilities. Summit provides preschool, school-aged, after-school and home based programs for children with ASD. They also offer Home Skills and Saturday Life Skills programs to address behavioral issues.

Preschool Learning Center, League for the Handicapped, Inc. Located in Springville, PLC serves children in a center-based program, and also provides therapeutic and special education services for children in their homes or in other community-based settings. They offer evaluations, early intervention services, center based programs, and other related services.

Baker Victory Services They offer a certified Tomatis-based preschool with full-day integrated classroom, ages 3-5. The focus is on enhancing a child’s ability to integrate the different sensory systems. They also offer therapeutic Tomatis programs for adults and children for a cost and provide Early Intervention (E.I.) services. The therapeutic Tomatis program is funded by the county for children under 3 who are eligible for E.I.

Bornhava An early intervention and preschool program, nurturing and educating children with developmental disabilities.

Autism Services, Inc. Autism Services, Inc. (formerly known as Autistic Services, Inc.) is an agency with multiple locations offering a variety of educational and quality of life programs that include Adult Day Programs, Residential Programs, Supported Employment, Family Support Services (including Medical Services Coordination, Respite, In-Home Clinical Support Program, Therapeutic Recreation for Autistic Children (TRAC) and an After School and Vacation Camp Program) and related Clinical Support.

Buffalo Hearing & Speech Center Buffalo Hearing & Speech Center offer a variety of communication-based therapies to service Niagara and Erie counties and school-based programs in Chautauqua County. Programs and services offered are Oral Deaf Education program, Language to Literacy, Social Communication program, Bridge Builders and Autism program, Early Intervention program, Preschool program and Clinical Services to include hearing and speech evaluations.

Cantalician Center for Learning, Inc. Cantalician Center for Learning, Inc. provides evaluations for children birth-5 years; integrated and non-integrated daycare and preschool programs birth-5 years; school age programs; vocational and day services; supported employment; and Medicaid Service Coordination.


Secondary Education/ College Optionsback to top
Aspergers Initiative at Mercyhurst The Asperger Initiative at Mercyhurst (AIM) is designed for students who, while exhibiting superior intellectual ability, face challenges in executive functioning and social interactions. The mission of the Asperger Initiative at Mercyhurst is to educate college students living with Autism Spectrum Disorders in a program that equally emphasizes academic and social competency. The program focuses on a collaborative model that promotes the development of self-advocacy and independent living skills to encourage sound academic and social progress.

Spectrum Support Program RIT Rochester Institute of Technology offers this program to individuals with ASD to help with the initial transition to college life, support the development of self awareness and self advocacy skills, and build skills and confidence while interacting with others.

CollegeAutismSpectrum.com This website has a list of colleges that have programs for individuals with Asperger's Syndrome.

College Internship Program (CIP) The College Internship Program is a comprehensive post-secondary transition program for young adults on the Autism Spectrum and with Learning Differences. Students receive individualized supports in the area of social skills, college academics, internship and career development, and life skills.


Recreational Resourcesback to top
SABAH Skating SABAH’s mission is to challenge individuals with special needs and volunteer partners to experience the success, pride, freedom and joy of therapeutic ice-skating while achieving personal growth.

Recreation and Leisure Directory 2013 The Recreation & Leisure Services Directory is a resource for individuals with disabilities and families. This directory is intended to assist users in finding physical, social and creative opportunities to enrich one's life. The Directory is updated during the spring of every year.

Find Your Niche Program A Town of Hamburg Recreation program for children with High Functioning Autism, PDD-NOS or Asperger's Syndrome. They have different low cost sessions during the year. You do not need to be a resident to participate. Call Town of Hamburg Rec Department for more information: 716-646-5145.

A Gift for Autism Bowling League The AMF Thruway lanes has a Parent-Child Bowling league on Saturday mornings. It is a very flexible league designed for children on the spectrum. Bumpers are available. Pay only when you bowl. It is a great opportunity for the kids to bowl when traditional leagues are difficult for them.

Toy Guide for differently-abled kids ToysRUs have developed a toy guide for differently-abled kids. This may be useful for the upcoming holiday season.

Clarence Adaptive Learn to Swim Program Clarence Learn to Swim offers several programs to children and their families. Two of their programs are specifically geared towards children with special needs and significant medical conditions.

New York State Office of Parks, Recreation, and Historic Preservation Access Pass The Access Pass permits residents of New York State with permanent disabilities, as defined in the application, free use of the parks, historic sites, and recreational facilities operated by the New York State Office of Parks, Recreation and Historic Preservation (State Parks) and the New York State Department of Environmental Conservation (DEC).

WNY Adaptive Water Sports This program is designed to accommodate people with a wide range of disabilities. Adapted equipment and careful coordination between instructors and volunteers helps the participants spend time enjoying the water by fishing, sailing, scuba diving, waterskiing, or just lounging in the water on a beautiful day.

The Town of Cheektowaga Adapted Recreation Program and Special Olympics The Cheektowaga Adapted Recreation Program is for youth with developmental and other disabilities, ages 5-21, and youth with learning and other disabilities, ages 5-16. The program is in session from October -May.

EMW Dream League Baseball EMW's Dream League was formed to give children ages 5-16 the opportunity to play baseball in an environment that is flexible and based on participants' abilities. Both resident and non-resident are welcome. Each player is paired with a "buddy" who provides encouragement and assistance as needed.

TOPSoccer-The Outreach Program for Soccer TOPSoccer, The Outreach Program for Soccer, is a New York State West and US Youth Soccer official program. This program is designed for children with disabilities, ages 5 to 21. This program accommodates all disabilities whether mental or physical. This is an exciting program that brings the joy of playing soccer to players who have not traditionally had a place in the youth soccer system.

Sweet Charlottes Bring your kids and let them explore, be inspired, learn, PARTY, and PLAY at Sweet Charlottes located in Clarence Hollow area, contact Molly at 320-5848.

CNBSA Challenger Baseball League The league has been specifically developed for individuals ages 5 and up who have a physical, mental or emotional disability, and would enjoy the fun of playing baseball. The game is played like T-Ball, everyone bats, everyone scores, there are no outs, and there are helpers "Buddies" on the field to assist the players.


Researchback to top
Treatment Guided Research Initiative Dr Martha Herbert is the director of the Treatment Guided Research Intitative for the National Autism Society. The objective of treatment-guided research is to bring research and treatment together to help people now. Many people with autism have chronic medical conditions that are often ignored. Through treatment-guided research, we can learn what is contributing to these conditions and look at autism as a whole-body condition, not a mental health disability. Follow the link to read about TGRI and some of Dr Herberts papers and articles.


Biomedical Resourcesback to top
Autism Research Institute Founded by Bernard Rimland, the A.R.I. publishes a quarterly newsletter, the "Autism Research Review International," that covers biomedical and educational research in the field of Autism and related disorders. The Autism Research Institute holds Defeat Autism Now (DAN!) Conferences twice a year to bring researchers and parents together. The ARI is also a good source for books on the biomedical issues in Autism. To subscribe to the Autism Research Institute's free monthly e-Newsletter visit Autism.com and click on "subscribe".

Overloaded? New Insights into Mercury Exposure and Autism Research scientists have found a signature metabolic impairment or "biomarker" in autistic children that strongly suggests that these children would be susceptible to the harmful effects of mercury and other toxic chemical exposures. Twenty local children participated in the landmark study by Dr. Jill James which is sited in this article.

The National Center for Complementary and Alternative Medicine (NCCAM) The National Center for Complementary and Alternative Medicine (NCCAM) is the Federal Government’s lead agency for scientific research on the diverse medical and health care systems, practices, and products that are not generally considered part of conventional medicine. This site is not specifically for autism, but can be used as a research tool when looking at alternative treatments. It also has information on clinical trials.

UMDF - United Mitochondrial Disease Foundation There seems to be a higher instance of Mitochondrial Dysfunction in individuals with ASD. Here is the link to the UMDF for more information on Mitochondrial disease and dysfunction.


Some Interesting Articlesback to top
PBS Parents - How to Help Children With Autism The information is intended to help parents of children with Autism improve the overall quality of life for their children and family. Learn about improving the overall quality of life for children with or without disabilities by promoting inclusion and respect for differences. The resources on this site help parents and caregivers create more inclusive communities.

P.O.V. - Refrigerator Mothers This episode of P.O.V. tells the story of mothers from the 1950s and 1960s, who struggled to raise autistic children in a society that had not yet begun to understand Autism. Web resources include an Autism Virtual Roundtable, where a panel of doctors and parents have posted answers to viewer questions. The page includes other resources for discussion, sharing experiences, and advocacy.

Autism A.L.A.R.M Publication put out by the Center for Disease Control and Prevention, the American Academy of Pediatrics, and Medical Home Initiatives. This was published in 2007, so the incidence rate is 1 in 150, which is now 1 in 110 and 1 in 70 for boys.

Some good things that comes from Autism - Savants Here's an article about Savant Syndrome that some people with Autism have. There are only a few Savants, but many kids and adults with Autism have special talents.


NYS Legislation that impacts Families with ASDback to top
Amendments to NYS Special Ed Regulations Recently, the NYS Regents Board met and made changes to the Regulations that impact students in special ed. Click the blue title to see some of the changes.

Updated Policies from NYS Education Dept Here's the link to the new NYS Education dept policies on Functional Behavior Assessments (FBA), Behavioral Intervention Plans (BIP) and Use of Time Out Rooms.


National Resourcesback to top
Autism Research Institute Founded by Bernard Rimland, the A.R.I. publishes a quarterly newsletter, the "Autism Research Review International," that covers biomedical and educational research in the field of Autism and related disorders. The Autism Research Institute holds Defeat Autism Now (DAN!) Conferences twice a year to bring researchers and parents together. The ARI is also a good source for books on the biomedical issues in Autism. To subscribe to the Autism Research Institute's free monthly e-Newsletter visit Autism.com and click on "subscribe".

ASA Brochures and Pamphlets The Autism Society of America publishes a variety of brochures and pamphlets on Autism-related issues. All of ASA's brochures are available in PDF format and can be downloaded for free by clicking on the appropriate option.

OASIS @ MAAP The Online Asperger Syndrome Information and Support (OASIS) center has joined with MAAP Services for Autism and Asperger Syndrome to create a single resource for families, individuals, and medical professionals who deal with the challenges of Asperger Syndrome, Autism, and Pervasive Developmental Disorder/ Not Otherwise Specified (PDD/NOS).

The Schafer Autism Report The Schafer Autism Report Provides list subscribers with the latest information on Autism topics, including Special Education, Secretin, vaccines, IDEA, and Autism research. This list monitors larger autism-related lists as well as newspapers and web sites for important news and developments to compile a daily online newsletter. Sign up for email newsletter to be kept abreast of recent developments in the field of Autism. Can be a paid subscription or a No cost scholarship subscription (paid for by sustainer subscribers).

Center for Autism and Related Disorders The Center for Autism and Related Disorders (CARD) is one of the world's largest organizations using applied behavior analysis (ABA) in the treatment of autism, Asperger's syndrome, PDD-NOS, and other related disorders.


Books, Videos and other Productsback to top
Future Horizons, Inc. A Leader in Books, DVDs, and Conferences on Autism and Asperger's Syndrome

Autism Asperger Publishing Company (AAPC) AAPC Publishing specializes in books and multi-media on autism spectrum disorders (ASD) and related exceptionalities for individuals on the spectrum, their parents, families, peers, educators and other professionals.

Jessica Kingsley Publishers Jessica Kingsley Publishers are an independent publishers of accessible books on Autism and Asperger's Syndrome that make a difference. Their books are for parents, professionals, academics and the general reader.

ZenWorks Productions Zenworks Productions sells reasonably priced DVDs of Autism-related workshops.

Natural Learning Concepts Natural Learning Concepts is an online source for a wide range of products for both teachers and parents. Their products range from timers to sensory products to oral motor to social emotional and many more. You can sign up for the email list to get notice of their specials.

Coulter Video You’ve come to the right place to find practical, effective DVDs, articles and other resources for people with Asperger Syndrome and autism and those who support them. We have videos that teach social skills, navigating puberty, and how to succeed at work or in college. We have videos that help family members, teachers, classmates, employers and others understand people who think differently. We have a wealth of free articles you can read, download and share – and online links to other sites we’ve found particularly helpful.